Update and Pictures!!

There has been a lot going on these past few weeks! We finally got a nurse in the house which worked out well for a while but it had to come to a close today. We are working to find someone new that will hopefully fit with our family.

We got established with a new Urologist that is planning to do surgery for Claire on June 30th to repair her kidneys. We really like him and feel really great about what he wants to do. We also met with a neurologist that we will NOT be going back to!

We have been busy getting the house decorated and organized which is making us all feel pretty good. The kids love their playroom, although Claire would rather be climbing the stairs....

Jack is doing pretty well. We were hopeful that his episodes were environmental and now that we were away from our Ithaca house they would stop but unfortunately he had another bad episode Friday night. He has had some trouble feeling himself since. The good things with Jack far outweigh the bad things right now. On Monday we took the kids to get their pictures taken at Sears and for the first time in his life Jack actually WANTED to get his picture taken! It brought tears to my eyes! (you can see the pictures below...) He is also completely in love with Dora and Diego. He has several toys and loves to pretend with them. The cutest thing he does is singing some Dora songs. I will sing, "I'm the map, I'm the map, I'm the map, I'M THE MAP!!" and then I say "Jack's turn!" and he'll mumble in a sing-songy voice! It is Way cute!!!!

Claire is about to turn ONE! I can't believe it! She has come so far this year. She has been standing independently for two months now but I think she is fearful of those first steps. Oh, but she is not afraid of steps! She climbs the stairs 20 times per day! She loves to get up to the landing, turn around and laugh at me. It is really sweet. She is using all sorts of words. She says "up, mama, dada, jack, ball, baby, dog," and others. She also makes several animal noises. She eats everything under the sun! She loves all fruits including strawberries, blueberries, grapes and bananas. She also eats everything we eat during the day. She even had a grilled cheese sandwich for lunch today. She really enjoys her meals and transitioned to milk without any issue. It is amazing to see the way a typical kid develops their eating skills.

So here are some pictures that were taken yesterday. I hope you enjoy them!!