Monday, July 12, 2010
Tuesday, July 6, 2010
Long overdue
Ok, First we are going to get the bad stuff out of the way so that we can focus on the good.
Jack
Jack started to have seizures again. He stopped breathing a little over a week ago. We called 911 and it took the ambulance 20 minutes to get to us. I would say that it was the worst one he has ever had. The thing that threw us off the most is that it happened in the middle of the day. Then, just when we were feeling secure that it wouldn't happen again for 2 months he did it again this Sunday. We didn't even bother calling 911 this time. We were able to get him back on our own just like we always do. We finally caught this one on the monitor and had the information downloaded this morning. The tech said she had never seen anything like it in all the years she has been downloading pulseox's. Now we live on edge waiting for the next one.
Claire
Claire had her first surgery on Wednesday. It was a full, heart wrenching 5 hours. It didn't go as expected but turned out to be just fine. The recovery is harder this way but they were able to fix her ureter and bladder. With her anatomy being different than expected they had to use 3 external catheters, 2 out of her abdomen. They removed one on Saturday, one today, and the final abdominal tube will come out next week. Then, we have a second surgery at the end of the month to do some final repairs. Her recovery has been miserable. The poor baby just can't be herself. My child who has always sucked her medicine right down wanting more has turned into a spitter. I really don't blame her with all the different medicines she is taking now.
OK! Enough of the bad! Now on to the good!!!!
Jack
Jack is vocalizing more and more! He now tries to say most numbers, quite a few letters, On, thank you, and sings some songs. He is doing simple math and spelling. He is just proving to us every day just how smart he really is! He is loving Dora and Diego, as usual. He LOVES ice cream and repeatedly aske to go the "the store with mommy's drink", aka Sonic, for an ice cream cone. He makes sure to get every last drop out of the cone without actually biting the cone. I have no idea how he does it!! What else.... He is now trying every kind of food I am giving Claire. He reaches up and takes it off her high chair tray. For now, Claire is accepting it but as she gets a little older she will realize she can yell at him. He is a wonderful, loving brother.
Claire
The question is, What is Claire not doing??? She is now RUNNING across the house. She can move so fast! She loves Dora and the puppies and will ask for it all day long. She loves to give her stuffed animals kisses and take them for rides in the stroller or on her scooter. She loves to give kisses, her favorites being butterfly kisses and eskimo kisses. She is just such a loving little girl. She has 6 teeth and is now cutting 2 more. She loves to do somersaults. She will tuck her head under and yell, "roll roll roll!". It is pretty darn cute.
Both kids are doing incredibly well. Philip and I aren't doing so bad ourselves. :-) Pictures to come soon!!!
Jack
Jack started to have seizures again. He stopped breathing a little over a week ago. We called 911 and it took the ambulance 20 minutes to get to us. I would say that it was the worst one he has ever had. The thing that threw us off the most is that it happened in the middle of the day. Then, just when we were feeling secure that it wouldn't happen again for 2 months he did it again this Sunday. We didn't even bother calling 911 this time. We were able to get him back on our own just like we always do. We finally caught this one on the monitor and had the information downloaded this morning. The tech said she had never seen anything like it in all the years she has been downloading pulseox's. Now we live on edge waiting for the next one.
Claire
Claire had her first surgery on Wednesday. It was a full, heart wrenching 5 hours. It didn't go as expected but turned out to be just fine. The recovery is harder this way but they were able to fix her ureter and bladder. With her anatomy being different than expected they had to use 3 external catheters, 2 out of her abdomen. They removed one on Saturday, one today, and the final abdominal tube will come out next week. Then, we have a second surgery at the end of the month to do some final repairs. Her recovery has been miserable. The poor baby just can't be herself. My child who has always sucked her medicine right down wanting more has turned into a spitter. I really don't blame her with all the different medicines she is taking now.
OK! Enough of the bad! Now on to the good!!!!
Jack
Jack is vocalizing more and more! He now tries to say most numbers, quite a few letters, On, thank you, and sings some songs. He is doing simple math and spelling. He is just proving to us every day just how smart he really is! He is loving Dora and Diego, as usual. He LOVES ice cream and repeatedly aske to go the "the store with mommy's drink", aka Sonic, for an ice cream cone. He makes sure to get every last drop out of the cone without actually biting the cone. I have no idea how he does it!! What else.... He is now trying every kind of food I am giving Claire. He reaches up and takes it off her high chair tray. For now, Claire is accepting it but as she gets a little older she will realize she can yell at him. He is a wonderful, loving brother.
Claire
The question is, What is Claire not doing??? She is now RUNNING across the house. She can move so fast! She loves Dora and the puppies and will ask for it all day long. She loves to give her stuffed animals kisses and take them for rides in the stroller or on her scooter. She loves to give kisses, her favorites being butterfly kisses and eskimo kisses. She is just such a loving little girl. She has 6 teeth and is now cutting 2 more. She loves to do somersaults. She will tuck her head under and yell, "roll roll roll!". It is pretty darn cute.
Both kids are doing incredibly well. Philip and I aren't doing so bad ourselves. :-) Pictures to come soon!!!
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